We are the Ingram family of 5. Jarrett-dad, Chelsea-mom, Peyton (6)-big brother, Conner (4)-middle brother, Trek (1)-little brother. We lived on the island of Maui from 2008-2012.

We have always wanted to travel full time as a family since we homeschool the boys and we wanted to show them the world.

On April 11, 2011 Jarrett delivered Trek in the driveway of our Maui home. It made us all realize how wonderful life is and we wanted to start travelling with our boys right away. We named our 3rd son Trek Atlas because we wanted to show our children the entire world. We began selling all of our belongings, Jarrett put in notice at his work and we bought 1-way tickets to Thailand for January 2012.

In December just days before our move to Thailand we took Trek to the doctor because he was losing weight and was not reaching all of his developmental milestones-eating solids (he was and still does only breastfeed) and sitting up. Trek was 8 months old.

In the next 24 hours we flew from Maui to Oahu to Denver Children’s Hospital where we stayed for 2 days and they diagnosed him with Neimann Pick Type A. A rare genetic disorder with no cure or treatment. Children with NPA rarely live past 2 years old.

We spent the next 4 weeks (January 2012) in Denver visiting family and friends and researching NPA and gathering pain medicine for Trek. We knew we had to get Trek 1 stamp on his passport and we wanted to continue our plans to travel with him. We have high hopes for him to never return to the hospital again.

We left for Disneyland in January 2012 with plans to continue to Central America. Trek currently has 2 stamps on his passport Nicaragua and Honduras. In May 2012 we are travelling back to Maui for a special fundraiser at Hard Rock Cafe. And then to Thailand in early June for more passport stamps!

We are devastated, our life will never be as sweet since Trek won’t be there. Right now we are just trying to soak up everyday with Trek, Peyton and Conner and trying to live by Trek’s motto that is on his bracelets-Embrace Life.

the following is what I had on the blog before we found out about Trek’s illness. It is just a little about each of us…

a little about me…

I love playing with my boys, snuggling, reading books: for children and myself, baking, breastfeeding, swinging on our porch swing, going on dates, drinking caffeine in any form, but a coke with ice and a pink straw is my favorite, clean sheets, learning how to make my life more full, the beach, homeschooling the boys, baby faces sticky with fruit, long kisses, cosleeping with our children, I love to make messes, but not clean them up, pedicures, fresh fruit, and creme brulee!

Jarrett-

The backbone of our family. We all wait anxiously everyday for him to come home from work-he is so much fun to be around! He is the most funny, loving, smart man I have ever met. He is always reading and writing, wrestling with the boys and taking me on dates. He loves video games and watching our favorite tv series together, but recently sold all the latter to focus on our dream of world travel so he could write more. He is a talented author. He always knows what I need even when I don’t and makes it happen. He is strong-willed and gets things done and I know we will accomplish all our dreams together.

Peyton-6 years

Is the best brother I have ever known, is a wonderful friend, will play with toys for hours deeply involved in some imaginative plot, jumps and climbs off of everything-no height is too great, loves learning and asks everyday to homeschool, wrestling with Daddy and Conner, swordfighting, playing video games, and will eat almost anything. Peyton is our sweet sweet boy, we are amazed daily that he is our son!

Conner 4 years

Calls Peyton ‘brother’ and is always by his side, you want him as your friend not your enemy-he will defend you to the death if he likes you! Loves to snuggle and wrestle. He is so full of life and love, he always makes us laugh with all the cute and funny things he does. He is the most passionate person I have ever met. He is the sweetest most doting brother to Trek, he is always kissing him and talking to him. He likes video games and watching movies, anything with cheese, is a huge mamas boy, likes to run around in the buff and has big brown eyes and chubby cheeks that will melt your heart.

Trek born April 2011

Our catapult into adverture-we named him Trek Atlas (the latter after my Grandpa), and for our life dream to travel the world. He was born in the driveway in our attempt to make it to the hospital and our life has not been the same since! After that moment Jarrett and I both realized that we needed more moments like this and began working on our dreams right away. I call Trek my little lover-he is the sweetest angel we have ever met. His 1st few months of life have been so relaxing and truly enjoyable thanks to all we have learned from our 1st two babies, Trek has had an unmedicated birth and an unvaccinated, uncircumcised life and it has made all the difference. He is so peaceful and alive-we are captivated by him and his enormous blue eyes.